Monday, April 9, 2012
When deciding on a focus of inquiry for this blog, I thought about the stress parents experience on a daily basis and how these stressors may be magnified when your child is diagnosed with a disability. Though I can not fully relate, I can appreciate what these parents may go through. My daughter has severe allergies. She is allergic to dairy, eggs, peanuts, tree nuts, penicillin, most animals, and just about everything in the environment (grass, pollen, dust, etc). She has an Epi-Pen available at all times and wears a medical bracelet. She is a healthy, bright, athletic, funny, happy eleven year old and I know her allergies pale in comparison to what some children endure but her allergies are something I think about and make accommodations for every day. I have to make sure that wherever she goes she has something to eat (we call it "Kirsten Friendly" foods), her Epi-Pen, and that I trust the adult(s) she is with has an understanding of and is prepared to deal with her allergies. She will be starting middle school next year which brings added worry for me. The teachers don't know her, there are new students and staff that may not appreciate the severity of her allergies, and I have to schedule meetings with the school to discuss her medical and emergency plan. I have found advice, suggestions, recipes, and help from online resources, talking with other parents that have children with severe allergies, and books. Through this inquiry blog, I hope to learn about the stressors placed on parents having a child with a disability and the resources available to them to help them cope.
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Kim,
ReplyDeleteI really like your inquiry question about parents and how to cope with the stress that comes along their way. I never thought about an allergy being as severe as your daughters! I know that many schools have gone to 'no food policies' which I actually think is best for the students because it would not be right for a student to bring in a treat for his/her birthday that is edible and one student be outcasted because he/she was unable to eat it. I also never thought about having to trust any adults that are with your daughter because they MUST know how to work the epi-pen in case of an emergency! You obviously do a great job managing your stress because you also seem very positive and happy all the times I have seen you :) Good for you and I can't wait to read more of your blogs soon!